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7 hours ago, maison rustique said:

Hugs for all. Must be something in the air. My husband is also going through a bad spell, which is not to say that you ever have a good spell when you have dementia. He is falling a lot. While I was at the orthopedist setting up my hip replacement, hospice was calling me, asking me to get his bed out of his room because they were bringing in a hospital bed for him. And the surgeon does not want me to visit the facility before surgery with so many active COVID cases and god-knows-what-else floating around in there. One of the night nurses (I think she must be a contract worker.) keeps calling me during the night to tell me he fell. She doesn't expect me to do anything about it, just wants me to know. Well, thanks for waking me up and insuring that I'll never get back to sleep.

 

I think I need a bionic body and super-human abilities for at least the next year or so. So much for ever getting this house down-sized and listing it for sale. One step forward, ten steps backward.

i'm so sorry. My best suggestions are to tell the nurse to text instead, unless he is going to the hospital. Hire a man with a van to remove the bed and then take it to storage for you or a donation drop off. Protecting your sanity and preserving your strength should be a priority. remote caretaking is complicated and often means cutting your loses where you can.

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A quick note to say that the hospice case worker said she's taking care of the bed (I don't want or need it back). I need to take some twin sheets for the hospital bed and some sweatpants for him because it is too hard to get him into/out of jeans now. They are ordering him a reclining wheelchair because he is too restless and won't stay in the regular wheelchair and unless someone is literally at his side constantly, he keeps trying to get up, which means he goes down.

 

We worked out a plan that when I take his BD cake and supplies tomorrow, I will have them whisk  me straight through to the courtyard, and then bring him out so we can visit outside for a bit.

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2 hours ago, maison rustique said:

We worked out a plan that when I take his BD cake and supplies tomorrow, I will have them whisk  me straight through to the courtyard, and then bring him out so we can visit outside for a bit.

I hope it goes well!

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I saw my husband yesterday for his birthday. Nothing could have prepared me. He isn't really alive--eyes closed, can't really speak or move, he has mostly stopped eating and drinking. Hospice says his vitals are still OK, but he is gradually shutting down. Just a matter of time. A day? A week? Hard to say.

 

I thought I was prepared. I almost think it would have been easier if I hadn't seen him. But I will go back today/tomorrow. I cancelled my EGD and colonoscopy on Tuesday. 

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I'm so sorry. What a difficult experience that must have been. I remember when my grandmother was in hospice, in a very similar state. It was comforting for us to just go sit with her. I hope it will be the same for you.

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  • 1 month later...

Checking in on our Dominican family down in Florida. The cousin is below Miami and will just get wet. The uncle is slap in the path and judged he couldn’t get out. Laying in sandbags.

Fingers crossed.

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1 hour ago, splinky said:

i was going to say i was worried about friends and family in the hurricane's path, but now that it's been pointed out that vacant properties are in real danger, i just feel silly. 

I see I've offended you by being sympathetic to the only person I know with a connection to the region. My deepest apologies.

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1 hour ago, Anthony Bonner said:

I called an aunt expecting to hear she was at my cousin's in Atlanta only to be told their entire assisted living community just south of Sarasota was going to ride it out.  Not great

Sarasotans seem inclined to ride it out. I have an older Sarasotan friend who says she is riding it out in her billionaire neighbor's "hurricane proof" mansion. 

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